News Release: latest AWHF report reveals the impact of health taboos on Alberta women
February 1, 2023
Report reveals the impact of health taboos on Alberta women
Taboos perpetuate discrimination and negative stereotypes, isolate women, and contribute to inequities in healthcare
A new report authored by the Alberta Women's Health Foundation (AWHF) reveals the toll taboos in women’s health have on Alberta women. Surveying the Silence: Exploring the impact of taboos in women's health shows the issues that have created a culture of silence that limit access to knowledge and care and leads to detrimental overall mental health and well-being.
"The Surveying the Silence report unveils dramatic findings on misinformation, misdiagnosis, inconsistent responses, and disjointed approaches to healthcare that women in this province continue to experience," says Sharlene Rutherford, CEO of the AWHF. "We know this is a result of lack of knowledge and understanding – and it can be traced to a lack of women’s health research. It is the mission of the AWHF to continue to walk the path toward equity and tackling taboos is part of that work."
The AWHF report includes the results of a survey of more than 2,200 Albertans, the vast majority of whom identify as women. The report, the second of its kind released by the AWHF, is supported by partner Organon. The report focuses on the quiet places, the topics our culture leads many of us to avoid, or the questions we do not know to ask. The conditions about which little is known and, according to respondents, less is done, such as menopause, endometriosis, painful periods and premenstrual dysphoric disorder (PMDD), polycystic ovary syndrome (PCOS), pelvic floor issues, and more. The pain and discomfort associated with these conditions often hang in the air unmentioned—or when voiced, can result in tension, confusion, or dismissal.
Patient advocate Kristina Jarvis shares many of the same sentiments of those surveyed for the report. "The reality is, PCOS affects so much more than a woman's ability to have children,” says Jarvis. “It affects our hearts, our body weight, and our chances of developing cancer. It affects how you see yourself entirely. Women's health deserves as much attention as that which is placed on the children we can or cannot bear."
“As a leader in women’s health and advocate for gender equity, Organon is acutely aware of the compounding and complex barriers women face in accessing healthcare,” says Michael Casia, President, and Managing Director, Organon Canada. “We are proud to partner with Alberta Women’s Health Foundation to help unearth these inequities, bringing stories to light to better understand how we can play a role to help move the needle toward equity.”
Dr. Jane Schulz, Chair at the University of Alberta Department of Obstetrics and Gynecology, has seen first-hand how embarrassment and/or misinformation can delay or avoid obstetrics and gynecology appointments that can lead to complications that turn a minor issue into a major health problem.
“Women regularly visit our clinic with advanced stages of uterine bleeding, prolapse, endometriosis, and gynecologic cancers because instead of addressing their gynecological health symptoms they simply regard them as ‘normal pain or discomfort they should just deal with’. As a result, their conditions are harder to treat, and the chance of a cure or positive outcome is less,” says Schulz.
Support from Albertans is needed more than ever
The AWHF is advocating for the government and businesses to invest in women's health research to dispel the silence that is plaguing women’s health, open the door for more productive conversations, and make change possible. The foundation is also calling on Albertans to step up as champions for women's health by talking about it and pushing for more flexibility in the workplace and greater support at home for working mothers.
"Even when women seek help, evidence shows many concerns are overlooked and dismissed, and they are more likely to be stereotyped as exaggerating or being over-emotional in healthcare settings. Evidence shows that women are less likely to receive aggressive treatment when diagnosed and are more likely to have their pain characterized as ‘emotional,’ ‘psychogenic,’ and therefore ‘not real’," says Rutherford. " This concept has been termed the ‘Gender Pain Gap’ and is worse for Black women, Indigenous women, and women of colour. The time for change is now.”
The survey – focused on the impact of taboos in women’s health in Alberta - was conducted July 11 - August 2, 2022, by Y station. A total of 2,229 respondents completed an online survey, with 91 % of survey respondents identifying as female.
To download the full report and infographics related to survey findings click here.
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Royal Alexandra Hospital Foundation
Women’s Health by the Numbers
- Almost two-thirds of women surveyed found it difficult to talk to primary healthcare providers about their concerns.
- Only 24% of women feel their physician is very knowledgeable about gynecological and reproductive health. Delays in treatment were commonly reported, and where a diagnosis is more complicated or specialized, such as endometriosis, a delay was reported by as many as 85% of sufferers.
- One in five respondents feels that their gender is a barrier to receiving care.
- Treatment effectiveness is another area of concern; more women report treatment for perimenopause is ineffective (39%) than highly effective (35%).
- The highest satisfaction in treatment for a diagnosed condition was for endometriosis, at just 44%, once a diagnosis was achieved.
The Alberta Women’s Health Foundation
The Alberta Women's Health Foundation (AWHF) aims to foster equity in women’s health, close gaps that exist in research today, connect pathways from lab to life, and advance clinical care at the Lois Hole Hospital for Women, Alberta's only dedicated women's hospital. An initiative of the Royal Alexandra Hospital Foundation, the AWHF supports 200 researchers at the Women and Children's Health Research Institute (WCHRI), whose research projects focus specifically on women's health.
Eliminating barriers to improving women’s health:
- By normalizing discussions around women’s health challenges and not accepting pain as normal or expecting women to just deal with the pain without treatment
- By becoming comfortable talking about women-specific health issues with physicians, employers, and personal networks.
- By asking questions and talking about women’s health experiences.
- By acknowledging women who are struggling with undiagnosed pain and encouraging them to seek treatment
- By implementing and promoting flexible work policies that accommodate time off for women to address health concerns.
- By encouraging women to address undiagnosed pain without fear of job loss or reduction of compensation or hours.
- By bolstering mental health resources and supports for all.
- By not judging those with employment gaps or entering new careers.
In the exam room:
- By asking the right questions, listening, and not dismissing.
- By promoting improved screening techniques for gender-based trends and concerns.
- By investing in women’s health research.
- By mandating the inclusion and analysis of sex and gender in health research.